August 2012 Scan - one year on treatment!

on Wednesday, 29 August 2012.

Wow has it been one year already!?

The 8th August was exactly 12 months since Laura and I were sitting in the Burzynski Clinic in Houston Texas.  At 11am we connected and switched on the pump for Laura's first ever Antineoplaston infusion, from that moment on she would have to have a 90 minute infusion every 4 hours - EVERY DAY 24/7

The future was still very uncertain for us back then.  Our lives at the time were a whirlwind, extremely stressful.  I really dont know how we all - especially Laura - managed to cope with the grade four cancer diagnosis let alone the NHS treatment options, alternative medical research and decisions, fundraising, flying to america for a month, and at the same time providing a normal balanced happy home for a two year old boy.  When we look back we both feel like we are looking at someone else's life.

Well we came home in September 2011 and Laura continued antineoplaston treatment, its been a very long year, this treatment literally takes over and consumes every day of your life.  Not specifically the side effects because Laura has been lucky enough to have minimal short term side effects, but the impact on daily life - the infusions, preparing the medicine bags, blood tests, etc..

As you can see by the scan pictures above its been well worth all the hard work and effort Laura has put in.  She has been so amazing, im so proud of her.  Mentally she has stayed so strong despite over the past 12 months having not slept a full night due to the infusions - we've calculated that she has had at least 2150 ninety minute infusions to date!

So where are we today?

Well - The Burzynski Clinic advised us that all they can see on Laura's MRI scans is scar tissue, a cavity present from where the tumour used to be!

Laura's UK radiologist was more cautious initially (probably because he has never seen a Glioblastoma dissapear before!?) however he reported on Laura's scan and came to the same conclusion as the Burzynski Clinic.  He reported today that he beleives all that he can see is a small cavity/scar tissue too!

The fact that these two parties do not have any contact gives us great confidence in the two mirroring reports!

These days, life is much more hopeful and slightly less stressful.  There was a time in our lives when we thought Laura would never get to hear our son learn to say ""I love you", ride a bike, swim, go on holidays

We still take every day as it comes and pray things continue on this path.  Laura, Jacob and I want to say a special thanks to everyone who donated and helped us make our miracle happen.

Thanks

Ben

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Blog Comments

  • Linda Lyons-Bailey

    08. March, 2012 |

    We keep getting hits from this site! Which is awfully kind of you guys. Bob and I hope Laura is still doing well, and here is an...

  • Magnus

    23. February, 2012 |

    Congratulations to you all it is very nice to follow you progress and 77% is awesome. I hope the success continues.

  • Javin

    02. February, 2012 |

    Tell the people who are talking in "Laura's Best Interest" to go to the US patent office website, and look up the 11 patents that the FDA...

  • Linda Lyons-Bailey

    12. January, 2012 |

    We are on the Temodar/radiation roller coaster ride. Glad to hear things are going so well!!! Maybe if we get a breather here we might...

  • Brian Carnell

    12. January, 2012 |

    :o) fantastic

  • Marian Reader

    21. December, 2011 |

    So pleased to hear that, at last, someone has the decency to acknowledge that maybe, just maybe, there's something in Dr. Burzynski's...

  • Brian Carnell

    09. December, 2011 |

    always great to see your updates and that everything is moving along so promisingly. all the best for your coming Christmas :o)

  • maureen

    08. December, 2011 |

    Hi, my daughter is suffering a similar tumor type and recently started on the Burzynski
    treatment. We returned from Texas three weeks...